Randomness

Mason is going to DNS for sure, YAY! I talked to Donna on Saturday, and he's definately going to go there 2 mornings a week, and then to Westlake, however many days they deem is necessary. Such a small victory! It felt like such a big thing, though. Just the thought of him not going to the nursery school I always thought he'd go to, made the whole thing that much more real. We are so lucky to have found DNS. It's such a wonderful school. Hayley has certainly thrived there the last 2 years. I'm so glad Mason will get to have that experience too.

On Sunday we went to a birthday party. There were a zillion kids there (it was at a park), and it made me sad to watch him. He obviously Wanted to join the other kids, but just didn't know how. I could see on his face that he knew he was missing out on some of the fun, he just didn't know what to do about it. I don't want him to miss out. :( He deserves so much better then that. He had fun, reguardless. Mostly playing on his own, and then one of the older kids (she's 7) took him under her wing for awhile, and he sort of played w/her for a bit. It just doesn't make sense to me. He can ask any one of us to play w/him. But you put him out of the family, and he just doesn't know what to do.
Later, after he ate, he was done w/the kids. He wouldn't even go to the playground anymore. He wanted to run around and chase the birds, lol. But he would not go play even near the kids at that point. He can only tolerate so much, and then he's done. At that point, if you even mention playing w/the kids he'll have a meltdown. He was pretty exhausted by then.

Today, I told him to finish his milk, and he told me "Hey! You go over there and read that book!" So I couldn't see him NOT drink his milk, LOL. The attitude is starting already! Hayley better outgrow it before he's fully in it, or I may throttle them both!

I've been reading a book about sensory processing disorders, and some of it is really hitting home for him. The fact that he hates swinging, the trampoline, and it took him until he was 3 to learn to jump are all big symptoms of sensory issues. Something about not having his feet firmly on the ground really freaks him out. That's probably why he can't pedal his trike yet, too. He wants too, but he is really having a hard time coordinating those muscle movements. It makes me so sad to see him missing out on things. He wants to ride his bike up and down the driveway w/his sister. He wants to join the kids, and do the things they are doing. He just can't seem to do it. I think we will be looking at some physical therapy, come fall.

I got something in the mail from UIC today. Nothing really helpful, though. When I did the intake call w/them, they asked for permission to enter him (us, the girls) in certain studies if he qualifies. One is a genetic study, and one is a sibling study. I said, yes, of course, so hopefully they can find a cause/cure so no one else has to go through this. So the paperwork I got (a dictionary, to be filled out in triplicate) is for those studies. Funny....it's been over a week, and I've gotten no word as to whether or not they will even see him there, but they were awfully quick to send out the paperwork to help them out. I'm not filling it out until I know he'll be evaluated by them.

So, basically, we're just waiting now. Waiting for Group Therapy to start this month. Waiting to hear from the ever-elusive UIC, and waiting for school to start this fall. I am not patient. At all. Waiting sucks!